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Thank You


For Your Support

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Thank You


For Your Support

To sponsor Barry at Ride Ataxia, please visit www.RideAtaxia.org/barryspage

 

IMPORTANT STATEMENT:

“A report commissioned by the Charities Regulator into the financial affairs of Ataxia Ireland has found that inappropriate payments were made to the founding trustees of the charity. The former trustees, who are the parents of the charity's CEO, were in receipt of payments totaling €84,000 between January 2008 and April 2016.”

[EXTRACT FROM RTE NEWS STORY RELEASED TODAY]

CLICK HERE FOR THE FULL STORY

I have stated this before but I feel I must do so again. Cycle Ataxia has no relationship whatsoever with Ataxia Ireland. I stopped supporting and ceased all communications with Ataxia Ireland in 2015 as I felt it was the correct course of action for Cycle Ataxia.

I feel at pains to stress this. People often assume that because of the rarity of Ataxia, that our 2 organisations are linked. We are in no way connected. Cycle Ataxia operates ‘completely’ independently of Ataxia Ireland. I hope that the findings of the Charities Regulator regarding Ataxia Ireland will not dissuade you from supporting Cycle Ataxia in the future.

Thank you for your understanding.

Barry Rice

2017 Highlights Video

About Cycle Ataxia

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What is Cycle ataxia?


Probably the best sportive in the world.

What is Cycle ataxia?


Probably the best sportive in the world.

Cycle Ataxia

What is it?

‘Cycle Ataxia’ is an annual, single day Charity Leisure Cycle. The event offers a wide range of routes to accommodate all levels of ability.  The event is fully catered, marshalled and all routes have medical & mechanical support vehicles. The next event will take place on June 17th, from Ashbourne, County Meath, Ireland.  The event is open to the public and all are welcome to participate.

What's it for?

Funds raised are shared between the Cycle Ataxia Trust and The Barry Rice Trust. The main ethos of the Cycle Ataxia Trust is to fund international research projects focussed on finding a cure or treatment for Friedreich's Ataxia.  Funds are also used for the benefit of people living with Ataxia in Ireland, including adaptive cycling equipment. A portion of the funding benefits the Barry Rice Trust. Barry established Cycle Ataxia in 2013 and lives with Friedreich's Ataxia. The Barry Rice Trust was established to provide for Barry & his family.

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About Friedreich's Ataxia


ALL YOU NEED TO KNOW

About Friedreich's Ataxia


ALL YOU NEED TO KNOW

What is Friedreich's Ataxia?

Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. It causes progressive loss of coordination and muscle strength in the arms and legs and trunk, leading to full time use of a wheelchair.  Most young people diagnosed with FA require mobility aids such as a cane, walker, or wheelchair by their teens or early twenties.  Onset of symptoms can vary from childhood to adulthood. Childhood onset of FA usually occurs between 5 and 15 years and tends to have a more rapid progression.

What are the signs and symptoms of the condition?

 

• Loss of coordination (ataxia) in the arms and legs.
• Fatigue – energy deprivation and muscle loss.
• Vision impairment, hearing loss, and slurred speech.
• Aggressive Scoliosis (curvature of the spine).
• Diabetes Mellitus (insulin-dependence, in most cases).
Hypertrophic Cardiomyopathy (a life-threatening heart condition).

There is currently No Cure & No Treatment

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The Cycle Ataxia Story


The Background

The Cycle Ataxia Story


The Background

My name is Barry Rice, and in January 2013 I was diagnosed with Friedreich’s Ataxia. 

I had been suffering from ataxia for years.  My balance and coordination had been deteriorating and my doctors couldn’t explain it.  When I began to have difficulty with my speech I was tested for Friedreich’s Ataxia (FA).

When I received my diagnosis I began to research FA.  I learned about the disease and what the future would hold for me.  I read about the research that was being undertaken in the hope of finding a cure or a treatment. 

Although I am unlucky enough to have this rare degenerative condition, I count myself lucky among sufferers of FA.  At the age of 36 I am still high functioning.  Although I use a wheelchair, I can still walk short distances (with the help of a wall or a shoulder to lean on).  In the majority of FA cases, sufferers are fully dependent on wheelchairs by the time they reach their 20’s, and in some cases this happens when they are as young as 6 or 7.  Complications such as diabetes and heart disorders reduce life expectancy drastically.

I have decided to use the abilities I still retain to raise awareness of FA, and funds for clinical research & patient care.  Although ‘Cycle Ataxia’ has been a personal project of mine, I could not have put it together without the support of Dermot Rice (Priority Management) & Martin Mannering and The Ratoath Wheelers.

 

The Cycle Ataxia Team

Dermot Rice (Priority Management) - Project Manager

Dermot Rice (Priority Management) - Project Manager

Martin Mannering (Ratoath Wheelers) - 110k Course Director

Martin Mannering (Ratoath Wheelers) - 110k Course Director

Peter Hally - Assistant Project Manager

Peter Hally - Assistant Project Manager

Mark McHugh & Ian Jenkinson (Ash Burners) - 50k Course Directors

Mark McHugh & Ian Jenkinson (Ash Burners) - 50k Course Directors